Helpful Resources
Along with the physical pain associated with this disease, those affected by histiocytosis face the emotional suffering of long hospital stays away from home and the fear of not knowing what will happen to them. The stress can devastate parents and other family members. In addition to Friends of the Artemis Association, there are many other trusted organizations that can help you navigate this rare disease. They offer in-depth medical information, patient and support services, clinic and doctor directories, and more.
Personal Stories
We believe that the more you learn about the disease from those who have been affected, the easier it becomes to face it. Many members of our organization have graciously shared their stories with our community over the years, and some families have created their own online communities and foundations. Learn more about their personal journeys below.
